My daughter has severe scoliosis...?

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She is 11 years old and is starting to have noticable side effects. The surgery to correct her 109 degree curve doesn't hold much promise of her making it through. She is being seen by some very good doctors but they are careful not to suggest doing it or not because of the possible outcome. We were against surgery until she started showing signs of pain, now we are somewhere in the middle. She is also deaf and is diagnosed with cerebral palsy and is non-communicative. I'd love to hear if anyone else has had experience with back surgery of this severity.